t
is indeed an inspiring and divine dynamic environment. It is the
creation to remove pain. It is the work of God." These were the
moving words uttered by the then Principal Scientific Advisor to the
Government of India and now our President, A. P. J. Abdul Kalam,
when he visited the Avedna Ashram in Jaipur. He referred to the
Ashram as the "Institution of Kindness."
The Khailshankar Durlabhji Avedna
Ashram—established on the hospice concept—is the only centre in the
State of Rajasthan providing free palliative care services to
patients with terminal illnesses (mostly advanced cancer cases).
These patients, who are virtually broken in all terms—financial or
societal—are taught to live with dignity and comfort and cope with
the realities of life and of the disease. These patients who have
gone beyond the curative stage come here not only from Rajasthan,
but from other parts of the country as well—in fact, more patients
come from other neighbouring States than from Rajasthan. The centre
is a firm believer in Mother Teresa’s words that "we can cure
physical diseases with medicines but the only cure for loneliness,
despair and helplessness is love. There are many in this world dying
for a little love."
It is the neat and clean home-like living
conditions, the serene ambience, nutritious food as per specific
requirements, devoted nursing care and expert medical supervision
that adds meaning to the life of these patients. Unlike the strict
clinical and disciplined environment of a hospital, the Avedna
Ashram has assiduously cultivated informal living conditions that
provide fellow-feeling and community living. It is only here that
the patients are also permitted occasionally to go home and meet
their near and dear ones and again come back to the Ashram.
According to Dr. S. G. Kabra, Advisor of the Avedna Ashram, the
centre has provided 37,000 patient-day services including all
palliative nursing and medical care and medicines to 1,329 patients
suffering from advanced cancer, till June, 2002. Presently, it has
70 per cent occupancy of the 75 beds at the centre. In the first
year of its existence, that is, 1998, only 44 patients availed of
its facility for a total of 1,493 days. However, once awareness
increased, the number of patients visiting the centre also went up.
In 1998, in all 237 patients lived at the centre for a total of
7,510 days. In 2001, 452 patients came to the centre and lived for
8,310 days. The centre is proving to be a sanctuary for cancer
patients from all over Rajasthan and the neighbouring States. Over
200 patients who have come to the centre so far are from outside
Rajasthan. The centre also provides free boarding and lodging to
people with paralysis below the waist. It enables such paraplegic
patients to become self-dependent through physiotherapy. The
treatment given here enables the paraplegics to develop their able
muscles so as to undertake all normal routine activities on their
own.
A chat with some of the patients reflects the
warmth, kindness and the dignity they get during the remaining days
of their lives. For 24-year old Mukesh, it’s like heaven. His cancer
of the brain that protruded from the skull was a sight that even
some doctors could not fully come to terms with, leave alone
treatment and regular dressing of his wound. But here, not only is
his wound neatly dressed every day, he is given full medication
also. The zeal of the nursing staff and doctors is enabling him to
lead a normal life. His wife, Santosh—the embodiment of courage seen
always with a smiling face—not only takes care of him, but also the
other patients at the Avedna Ashram.
Amar Singh, a resident of Kangra in Himachal Pradesh, is an
ex-soldier and has been staying here for the last seven months. He
is still trying to accept the reality of his disease (cancer in the
respiratory tract) but is happy with the treatment and care he is
getting here. He doesn’t want to go back home as he will not get the
required medication and treatment that he is getting here. He has a
son, who is also in the Army, who visits him occasionally, but the
nursing staff and the patients are like his family now.